He came up with a plan and carried it out.

 

Tonight DC put away his computer and began his bedtime rituals…

  • Moving his pile of 3 books  from “their spot” at “his spot” at the kitchen table, to their “bedtime spot”.
  • Moving his stack of papers from his kitchen chair “spot” to their “bedtime spot”.
  • Putting his DVDs away.
  • Taking off his “If I Need Help” dog tags and his medical alert bracelet.
  • Turning off the lights in the kitchen.

I asked him what he was doing as it was only 6:00 PM.

No reply; he just continued on with his night-time rituals.

I told him again that it was only 6 o’clock.

He was in no way tired or sick. He had just been “ice skating” and dancing around the kitchen and living room.

  • He went upstairs to brush his teeth
  • He came over to me and pulled down his bottom lip so I could see his brushed teeth.
  • He went to his room and got his pillows.
  • He went to my room and got mine and brought them downstairs.
  • He got out his blankets and his iPad and got into his “spot” on the couch and was ready for bed.

I was confused by all of this. Not to say that all of this isn’t the norm every night, but not at 6 o’clock unless there is a storm.

And then it hit me….

The last time DC slept in his room and not on the couch was Christmas Eve (because… Santa). The last time before that was Christmas Eve 2018. Earlier in the day we made a deal – or so I thought. He agreed to sleep in his room tonight. We talked about it for a good long time and this time I thought I made it easier for him to accept by compromising and telling him that for now, I will only ask that he sleep in his bed tonight. He could sleep on the couch the following night, an so on. We would take it one day at a time. (My back was/is screaming for mercy, but we’ll take it slow anyway).

He agreed.

Some backstory from 2018 – The Couch; Another Round:

When DC was young, he would come into my room when there was a storm and he was afraid. This did not mean he would calm down but once he tired of repeating the same few phrases over and over again, he would finally fall asleep.

He is  27  now (chronologically) and it is no longer appropriate for him to come and sleep in my room. He does not understand this because in his mind, the storms are just as scary as they were when he was young and quite honestly, developmentally, he is just as young as he was then. There is no good way to explain this to him.

So……  now during storms or when he hears a loud noise that might be a storm or fireworks or a truck driving by or a plane flying over head…… we sleep on the couch.

I have a sectional.

He sleeps on the chaise lounge (the bottom of the L)  and I sleep on the straight part.

He was trying to get out of the agreement he made to sleep in his room.

He assumed that if he just got everything together right after dinner, ignoring my “What are you doing”s, and just got himself set up and on the couch,  I would forget about our conversation and our agreement.

You know what? It worked.

If it had been his regular time to go to sleep I would have reminded him that he agreed to sleep in his bed. Although my aching back should have reminded me; the fact that all of this was going on so early and he seemed to be on such a mission to get all of his rituals done quickly, I was too busy being confused to remember our conversation earlier in the day.

Apparently DC had not forgotten.

Well played, DC. Well played.

Tomorrow, I will be ready.

(I do have to admit that I AM a bit impressed by his well thought out plan)

 

*****

For anyone that might be new here: “I tell stories, most of the time; single individual stories about this or that. Some may be written with humor and some may come across as “Oh, look at the cute thing DC did or said” (he does crack me up at times) but my object is always to make people understand how his mind works, never to “make fun of him”

It is difficult to explain “his” autism to anyone without resorting to 1000 examples and 1000 stories. So I tell 1000 stories to make clear that there are other sides to autism than the characters seen in TV or movies.”

 

 

 

DC and BB Do Christmas in EUReKA

 

Just a little bit of ‘cross-posting’ for the Holiday Season from our EUReKA podcast.

DC and his best friend BB co-host the two EUReKA Christmas Episodes.

DC has co-hosted a few times with me in earlier seasons. It was difficult for him. I normally had to play the episode silently for him and ask him specific questions about what ever scene we were talking about and then still I sometimes did not get a response and had to prompt a response out of him. There were also times when I just had to go back and record me asking him questions, getting his answers and then insert them into the already recorded episode. Although he wanted to do it, he found it difficult to sit through an entire recording session.

When BB is with us, DC seems to be able to sit through the entire recording session, without watching the episode on mute. He answers questions and even adds his own two cents with out prompting. I am really proud of both of them. (BB does have his own on-line radio show, Wbjb101’s Show so talking “on mike” is not new to him, but talking about an episode of a TV show surely is). They both did a bang up job!

********

The first episode, aired after the mid-season finale in the original run of the series.

Our podcast episode was published on August 21, 2019 in the same position.

S4-E10 O Little Town

Vickie is joined by DC and his best friend BB for one of DC’s favorite episodes of Eureka – O Little Town – a Christmas episode of course.

We had fun recording this but it did get very noisy! So please try to ignore all of the background noise and enjoy the episode.

“Sheriff Carter relates a Christmas story in which the defensive field malfunctions trapping everyone in town for the holiday. So Fargo throws a big party, unaware that the town is shrinking. All from a quest for the perfect fruitcake” ~ IMDB Description 

If you are a first time watcher, we suggest that you watch the episode BEFORE listening to this pod cast.

LISTEN HERE:

Or Listen at Podbean

Download: here

Also Available on Google Play

****

Episode number two originally aired at the end of the 4th season. Our podcast episode was published on November 20th in that same position.

 

S4-E21 Do You See What I See?

Vickie is joined by DC and his best friend BB for DC’s favorite episodes of Eureka – Do You See What I See? – a Christmas episode of course.

We had fun recording this but it did get very noisy! So please try to ignore all of the background noise and enjoy the episode.

Sheriff Carter and Allison Blake are secretly planning the perfect holiday surprise for their kids, but a mysterious kaleidoscopic wave of color crashes over Eureka, leaving the entire town and its inhabitants animated.

Listen Here

Or Listen at Podbean

Download: here

 

Also Available on Google Play

Theme Music: That Positive Feeling (Loop) – Track

By: alumo

Standard License

****

Happy Holidays from DC and BB (and me too!)

 

 

Hey Santa, Don’t Pass By The Older “Kids”

Thanksgiving weekend is usually DC’s big step into the Christmas Season.

We normally go away for Thanksgiving and the weekend after. Once Thanksgiving Day is officially over, Friday and Saturday are usually all about Christmas.

There are a few standard stops that we make each year, one being the Santa Express or the North Pole express.

We like to arrive at least an hour before our appointed departure time so that DC has enough time to spend in the train station.

He writes and mails his letter to Santa at the special post office.

There is always a Princess or two walking about . This year he met Princess Poinsettia. If you ask DC about her he will tell you that she is the princess of the Christmas Flowers.

She came by and spoke with him more than once. They had a good long conversation about his upcoming train ride. She told him all about the Elf training and made sure he knew to ask for a report card when he got on the train (which we did).

She spent a lot of time with him and he was in his glory.

He enjoyed meeting the many characters that were wandering about.

He particularly loves listening to the singers singing Christmas carols.

He was excited to see that the singers were the same singers as last year. They were fabulous with him last year and even asked to have their picture taken with him (and we all know how much DC LOVES to have his picture taken)

Last year, 2018

 

He found them first in the Gingerbread House room and he followed them around, so much that I felt like a stalker. He followed them out to the main room where he requested “Deck the Halls” and sang along to Deck the Halls and every other song that they sang. They were almost apologetic when they had to take a break and put the regular piped in Christmas music back on.

When they came back to play some more, he was right there. They told him that they remembered him from last year (of course they didn’t but he was happy to believe that they did). DC actually asked, on his own (he usually has me do it) for a picture with them. He absolutely loves listening to them and I must say, they both have the perfect personalities to be doing just what they are doing.  He just adores them.

 

It was finally time to board the train. We found our seats. He met some elves. They gave him his elf hat and his elf-in-training report card, just as he and Princess Poinsettia discussed earlier. And we were off.

There was singing, dancing and joke telling along the way and DC passed every Elf Academy test.

It wasn’t long before we spotted Mrs. Claus. Now, DC is a big fan of Mrs. Claus. Sometimes I think he’d rather see her if given the choice between the two.

As Mrs. Claus made her way through the car, stopping at every single seat (as you would and as she always does), Doug moved to an empty seat so as not to block access to DC and so there was space for me to get a photo.

A couple of years ago I was convinced that Mrs. Claus was out to get me because everywhere we went and everywhere DC met her, she gave him a bell. Mrs. Claus did not do that on this day (Thank you, Mrs. Claus), she stopped and chatted with DC and we took a picture. She continued on her way stopping at every seat including the one where Doug was sitting by himself and said hello.

Did I mention that he loves Mrs. Claus? Did I?

He saw that Santa was heading his way and he was getting more excited by the second. He could hardly contain himself when Santa was at the seat right across from us because he knew he would be next.

Santa finished up with the kids in that seat, turned around, looked at DC and walked right past to the seat behind us.

If you could have seen the look on DC’s face…. He was crushed.

As you can imagine, I was not having any of it and YELLED “Excuse Me” to which Santa turned around and looked at me, still oblivious to the fact that DC may have wanted to talk to him so I gave him one of my well cultivated death stares and motioned toward DC.

He said “Certainly” as if he was doing me a favor and took a photo with DC. There was no conversation; he just posed for the picture with DC and went on his way.

If I had not been able to get his attention before he finished the last two seats behind us, he would have been off in another car and DC would not have seen him at all.

DC was happy to get a picture with him at least.

Now listen, I understand that DC is a “bit” older than your average passenger but seriously, we are on THE SANTA TRAIN.

He was sitting there wearing an elf hat and holding his elf-in-training report card.

It is not up to you, Santa to decide who might be too old to want to talk to Santa. Not up to you at all.

You stop at every single seat regardless.

I have to imagine that this was one of Santa’s fill-in helpers and not the real Santa because the real Santa would have known better than to skip over any one.

I think Santa may need to call all of his helpers back to the North Pole for a little Awareness training.

I’m sure DC, since passing his elf training would be happy to help.

But seriously, the rest of the day was fantastic and I can not say enough about all of the other people working both in the station and on the train.  They went over and above any expectations we might have had.

Unfortunately, with Santa being the “main event”, the slight was that much more disappointing. How long does it take to stop and say hello? I was not expecting any special treatment nor do I ever ask for special treatment. I do expect that he be treated in the same manner as every other passenger on the train.

That is not a lot to ask.

As I said earlier, Mrs. Claus was good to me and did not give DC a bell….

The Elves…..

They gave him a bell…

It is a full week later and he is right at this moment ringing it behind my head.

The Elves; they were also very nice to him so I can forgive the whole bell thing 🙂

 

 

The Many Meanings of “Sorry”

I wrote the post below six years ago. If I were keeping track, I would have to imagine that “Sorry” would most certainly show up in the top 5 on the list of DC’s most used words.

Some of the time, he IS sorry for something or another, but as I have said and written many time before, he really does not understand what “sorry” means. For him it is just something to say when he thinks he’s done something wrong, when he going to do something he shouldn’t and for many reasons that really don’t have anything to do with being sorry.

This morning, I, (“grace”) tripped over the coffee table, broke a coffee cup – spilling the contents on the way down and smacked my arm on said table hard enough so it was bleeding. DC told me he was sorry. In cases like this, I am never really sure if he thinks he has done something or is he reversing things and really thinks that I should say that I am sorry for falling over the table. Or… as a speech therapist once told me, is it his go-to word that he uses when he does not know what else to say?

I explained as I do every time he says he is sorry for no reason, that he did not do anything and there was nothing for him to be sorry about.

I have come to realize over the years that “I’m sorry” is not only used for the reasons above and in the post below. Sometimes he uses it as his way of telling me that something is bothering him….

The other morning his iPad broke, right before he was ready to leave for work.

I know you all just stopped breathing (as did I) in anticipation of the fallout.

Surprisingly, the fallout was minimal. He was upset but calm. For once, he did not apologize for something that was not his fault. He listened to me as I told him I would have to buy him a new one but he could use his phone or my “tablet” in the meantime.

He repeated all of that back to me a few (or more) times before he left. I, in turn had to verify all of what he was repeating and repeat it all again to him.

His transport arrived and he left.

Just like that.

My phone rang on my way to work. It was DC (Spontaneous phone use… Yay!).

I said “Hello” and the first thing he said was:

“I’m sorry”

I did not know what he was sorry for now. I thought that maybe he did something at work and he was now telling on himself – something he does often.

But, no. When I asked him what he was sorry about he said:

“No sorrys. Mom will buy new iPad.”

He was worried about the new iPad more than he let on before he left. It was bothering him. He wanted to talk about it again.

Saying “I’m sorry” is his way in to a conversation about something that is bothering him.

The iPad was bothering him,

He wanted to talk about it.

He called me (again, spontaneous phone use – I will take it)

“I’m sorry” helped him to start the conversation.

 

 

“Happy?” – “Sorry” – What’s next?

Yes, John Lithgow is "Happy"

Yes, John Lithgow is “Happy”

Years ago, DC and I were out doing errands. We had to have stopped at 3 or 4 different stores, which at the time was very difficult for him. By the time we got to the Health Food store, he was so out of control that the cashier saw fit to stop the line to try to educate me about just what vitamins, etc. I should be giving him to combat his ADD – (Holding up a line of customers to give me advice in front of all those customers, was just what I needed). I informed him that my son had autism, not ADD, but thank you very much!

On the way out, I said “I am not very happy today”. That one single comment led to years of DC asking everyone if they were happy. He did not have many “words” under his belt at the time, but he did manage to ask everyone he met if they were “Happy?” (Can you say “guilt”?)

* We have an autograph on a golf card from John Lithgow making it clear to DC, that yes, he is “happy” (see photo).

Eventually he stopped asking people if they were happy and the “Happy” question was replaced with “sorry”. I am sure this is my fault as well. Somewhere along the line I must have told him to say he was sorry for something and there it began.

He is sorry for absolutely everything! Partially because he believes an “I’m sorry” will get him out of anything.  He thinks that saying “I’m sorry” even when he doesn’t know what he is sorry about will get him out of anything or at least get me to stop talking. When he really wants to bring it home he will move on to: “I’m ‘ter-bly’  sorry” or “I am soooooo sorry”. He will even throw in a “Can you ever forgive me?” (movie line) when he really thinks it is necessary.

He says he is sorry, WHILE he’s doing something he shouldn’t, and will continue right on doing whatever it is because he is covered, he already said he was sorry. Or he will say he is sorry when he is about to do something he knows he shouldn’t. He is covered- he already said he was sorry!

He says he is sorry when he asks a question and the answer happens to be “no”. In his mind, “no” is a negative even when it is just an answer to a question. I have tried to explain all of this to him but as much as I try to simplify there are just some things he will never understand.

Don’t get the wrong impression; he is not upset or anxious when he says he is sorry. It is just a word to him. He does not constantly think he’s in trouble. It is just something for him to say….. over and over again.

A few days ago he somehow figured out from one of his books that the word “Sympathy” in a way means “sorry”. So on that day, DC was “in sympathy” for sneaking chips.

I think I might like that better.

 

Belts…. They Worked Until They Didn’t

I saw a post a while back from my friend over at Our Adventures with Riley  (the actual post can be found below) and thought what a great idea this would have been back when DC had such huge issues with wearing a belt. Not only did he just not like wearing them but he had a hard time buckling and unbuckling them.

Then there was the placement of the holes. They were never quite right, so years ago we moved on to cloth/canvas belts. Those seemed to work a bit better. No pesky holes to deal with.

He went a good long time using the cloth belts with no issues.

Then one day, he could not figure out how to put one on. He was trying to start from the side pants loop which meant when he was finished the buckle would be on his side instead of in front.

I don’t know what caused this confusion, but it continued. Every day he came and stood in front of me so I could see if he was starting his belt correctly. Sometimes he did and other times, not.

Along with the new processing issue of putting on the belt, he seemed overly obsessed with the belt being as tight as possible, which again was never an issue.

(He had lost some weight so I believe that all of this is related to the weight loss and his belts feeling different on him)

Because there were no holes and a D-ring instead of a buckle, they were loosening up after a few minutes and we now had the constant, all day adjustment of his belt – over and over again.

Soooo, we went back to the buckle belts. I found a few that had holes everywhere so it didn’t matter which hole he used.  He could wear it as tight or as loose as he wanted. He wasn’t limited by the placement of the holes.

Now that we had all of that squared away, he seemed fine and no longer had any issues with his belts. He was happy with his belts for so long of a while that when I saw the belt post from Riley’s page I did not think anything of it, other than it would have come in handy way back when we were having belt issues.

Speak too soon, much?

Recently he developed another issue.

The overlap.

The excess after his belt was buckled, HAD to either go only as far as the next belt loop or it had to reach the second belt loop. There was no in between. If it went out past the first loop he would pull his belt tighter and tighter until it reached the next loop.

And again, there was the constant, all day long adjustment of the belt. It got to the point that the adjustment of his belt was holding him up during every portion of his day.

I tried cutting a few so the excess was just long enough to reach the first belt loop, but I had to be precise in my measurements and some belts just can’t be cut.

I remembered and I went back and searched for Riley’s belt post and ordered a few.

It took a while to get the belt on him and it will take a while for him to be able to put them on himself because they are  different.  But I was more worried about the reaction of WEARING something different than I was in him learning to put it on.

When I got the belt adjusted and on, DC’s first word was “Amazing!”

That was a good sign.

He didn’t take it off and wore it the rest of the day.

Another good sign.

We are still working on him learning to put it on himself so at this moment in time, he alternates between the new “Buckle-less Belt” and the one that I was able to cut exactly to reach the first belt loop.

Progress.

Happy Halloween – Sing it with me… “It’s Raining Again”

 

DC does not like the rain.

He just does not.

When he was younger, it was just the rain he did not like but now, in his mind – rain leads to storms so there is no tolerating the rain at all any more.

I remember taking him to a birthday party when he was younger. One of the activities planned was a water balloon fight. Getting wet without a bathing suit on was always an issue, but we were instructed to wear bathing suits.  After a lot of explanation, I thought he’d be okay with it.

Unfortunately it was raining when we arrived.

It was summer. They were already in bathing suits.

So why not have the water balloon fight?

Why not, you ask?

You have to understand that to DC, rain means hurry to the car, or out of the car and into the house so you don’t get wet. Or hurry anywhere you are headed to or from so you don’t get wet. Run into the store, so you don’t get wet. Baseball is cancelled because it is raining. Cross country is cancelled because it’s raining. Outdoor activities are cancelled because it is raining.

So you don’t get wet…

Because it’s raining…

We don’t walk around in it and we certainly don’t go outside to play in it! There are no gray areas.

In case you were wondering….

It didn’t go over well.

This year we were expecting high winds and rain for Halloween (and we got both).

Now, I am not one of those people who think that Halloween should be cancelled and rescheduled when bad weather is predicted. This is strictly a “DC” issue and I was a little bit concerned.

I talked about it all week.

He looked nervous each time we discussed it but he still wanted to go Trick-Or-Treating. I told him not to worry, we will use umbrellas.

During the monsoon part of the afternoon on Halloween Day, I ran around town trying to find some of those clear plastic rain ponchos for him and his friends. (You NEVER wear coats or jackets over a costume! It’s a rule. Look it up.) But because I did not think ahead, there were none to be found any where.

Fortunately the rain calmed down and stopped for a little while when we were ready to go to *Candy’s house for dinner with her and *Sally before we all went out Trick-Or-Treating together.

They had their dinner and a few treats and off we went.

I had been poured on many times already that day when I was out looking for ponchos and earlier when I went out to look for an umbrella to match his costume (yes, I did) so I was over trying to stay dry at this point.

We were pretty lucky for the most part.

We had some rain.

We had some wind.

 

But fortunately not all at the same time.

DC went from “I’m getting very nervous about this” to (insert excited voice) “Happy Halloween! Thank you” and back many times over.

We did not visit as many houses as we usually do but they all came back with a good amount of candy, mostly from people trying to get rid of their overstock due to the smaller than usual weather-related turn out.

I would have been surprised if DC had opted to skip Halloween due to the weather, but one never knows when rain is involved.

It all worked out and the 3 of them had a great night.

(I think the 3 Mom’s had fun too)

In true DC fashion; when it’s over, it’s over.

In the car on the way home, he obsessed about changing the calendar to November and when he did:

“Mom, I’m so excited about Thanksgiving”

over and over.

Hope you all had a Happy Halloween!

***

Our 2019 Costume “Parade/Wrap Up” can be found here.

 

 

2019 Halloween – Merlin from The Sword and the Stone

 

 

 

Cheerios and the Order in Which They Shall Be Eaten

 

DC was always a big fan of Cheerios. He eats them every day for breakfast and sometimes just as a snack.

His ‘weekday’ breakfast consists of dry Cheerios (no milk, ever), a banana (you knew that), an apple, a glass of orange juice and a glass of water.

Over the last few months or so, I noticed he was not finishing his Cheerios. He was handing back the bowl with only a few spoonfuls being eaten.

First I thought that he just decided he no longer liked Cheerios. It would not be the first time that he LOVED something for years and then just stopped eating it.

I got him a different, agreed upon cereal. He liked it but again started handing it back to me after only a few spoonfuls.

I started thinking that there was something wrong with one or more of his teeth and maybe it hurt to chew the cereal. He said “yes” and pointed to his tooth.

I took him to the dentist and they found nothing wrong.

Yes, I know! I asked a leading question and got the answer he thought he should give.  I should know better at this point.

Thinking that maybe he was just becoming impatient with the chewing and just wanted to finish and move on with his morning, or that because he had lost so much weight, he really wasn’t that hungry anymore – I started giving him much smaller portions.

He still handed it back to me after a few bites.

We alternated between the Cheerios that he still insisted that he loved and the Chex that he still said he liked, but he still handed it back to me.

Hmm.

Everyday after he finishes eating the food portion of his breakfast, he takes his juice and water to the other room and finishes it while using his iPad and writing his ‘princess papers’. This is what he has done every single morning for years.

I realized that I was partially correct with my ‘impatience’ assumption when one day I after he handed me his cereal bowl, I moved it to his ‘spot’ in the other room with his iPad and princess papers. He finished it while he was watching/writing.

The other day he handed me his cereal and said “I want to take a break”.

“I want to take a break” was new, usually he says “finished” when he gives me his bowl. I realized that the other issue was that he would not eat his apple or banana until he was finished with his cereal.

WE

EAT

ONE

THING

AT

A

TIME

I told him that it was okay to eat a little cereal and then have some fruit and then go back to the cereal.

He could even have some banana first! (GASP)

He thought that notion was just too hilarious to even consider and I must have been joking.

So I moved his cereal into the other room.

With that gone, he was able to eat his banana.

And with that gone, he moved onto his apple.

Bottom line; he thinks he has to finish one thing before he moves on to another. If he wants to move on to the other before whatever he chose to eat first is gone, it has to be removed from his sight (even if he does still want to finish it) until he has eaten whatever he wants to eat next.

He just can’t have it there in front of him.

And, so….

he ate the rest of his cereal in the other room.

****

Updated (before publishing): Although DC seemed to brush off the talk we had the morning before and ate his cereal in the other room – it must have sunk in later on.

The following morning he showed me his bowl and said:

“I want to take a break”

Me: “Okay”

Instead of handing it to me to remove from his sight, he put the bowl down in front of him and started on his banana!!!!

It did not have to be removed and he went back to it later!

He still announced it as if he needed permission, but he moved on.

Progress!

 

Everything is Related: Star Trek and Geppetto

As you may or may not know, DC, Doug and I are going on a Star Trek Cruise in March.

To make most trips more interesting for DC, I always try to come up with something that he likes and relate it to the thing we are going to do.

(See: The Everything is Related Series)

Now, DC is my child so OF COURSE he knows Star Trek. One of the first signs he learned when he was younger and before he was verbal was the “Live Long and Prosper” sign. He did not understand “Live Long and Prosper” but it was his sign for Mr. Spock.

But still I have tried to find things relate-able to Disney or other movies and characters that he loves just to be sure he is excited.

Other than “the Captain who shall not be named”; who will be there, he does have an affection for, to put it mildly, Nana Visitor strictly from Deep Space 9, no relating necessary in that case.

He loves Levar Burton from Reading Rainbow, but unfortunately, he will not be in attendance.

Whoopie Goldberg, who will not be in attendance is relate-able for DC from Sister Act, the Cheshire Cat in some version of Alice in Wonderland  and a YouTube clip from the View where she is introducing the cast of Shrek the Musical (to the person who posted that clip; you are welcome for the thousands of views).

He has met Robert Picardo more than once so he is definitely recognizable to DC.

Now, he does of course, recognize all of these characters just from all of the series’ playing on our television most of the time. He can tell me which series we are watching and he does know some of the character names. I do always point out which characters will be on the ship when they show up on screen.

I am not worried he will not have a good time.

But…. relating someone to some other character that he knows always brings it over the top for him and I wasn’t having much luck in that area.

Last night we happened to be watching an episode of TNG.

The beginning credits were running. I was not really paying attention when DC said:

Brent Spiner. Not Stromboli in “The Wonderful World of Disney’s Geppetto” (we must always recite the entire title of any movie, book or television series)

When DC tells me that someone is NOT a character, what he is actually telling me is that the actor IS the character; in this case “Stromboli” in the movie he just mentioned but he is not playing that character in this movie or television series we are watching at the time.

DC has been watching his Geppetto DVD … um, excuse me: “The Wonderful World of Disney’s Geppetto” for many years. I had never seen it, but I looked it up and he was correct!

Apparently, DC had not ever recognized him as Data, but he did recognize his name in the credits, because he does know the name of every person that has played or lent their voice to any Disney character.

– But you know that all ready.

Once again, DC did the work for me.

I will have to have him watch more of the credits on the other series. Maybe he can pick out a few more people that he knows.

Suggestions are always welcome.

 

 

Write? Why?

I have been badly neglecting this blog lately so I thought I would post a “refresher” for those who may be new here and to my Facebook page.

Why do I write?

I never really intended to write a blog. My blogging began one day when I was writing an extremely long response to a blog post that I had just finished reading. After I hit “post” I decided that writing a response to this post on someone else’s blog was not going to make me feel better about the topic being discussed. I opened an account, copied and pasted that very long comment, on to a page and started my blog.

I was so worried that I would never have enough to say to sustain a blog, but I went for it anyway. It turns out that I did have a lot to say. I don’t know how many people care to hear what I have to say, but I say it anyway.

“I tell stories, most of the time; single individual stories about this or that. Some may be written with humor and some may come across as “Oh, look at the cute thing DC did or said” (he does crack me up at times) but my object is always to make people understand how his mind works.”

It is difficult to explain “his” autism to anyone without resorting to 1000 examples and 1000 stories. So I tell 1000 stories to make clear that there are other sides to autism than the characters seen in TV or movies.

I read many blogs as well. Many of the blogs that I do come across are written by parents of younger children. Most are wonderful and very informative. There are many that I absolutely love, but I always feel that the parents of adult children do not have an equal voice in this community. We are cast aside, or worse, berated. I am not in any way saying my blog is the voice of parents with adult children, but I am ONE voice and ONE opinion in a sea of blogs and opinions that do not seem to make room for the parents that have been at it  for many years now.

I was very tired of being preached at and constantly being told how to feel by those who have not reached this point in their child’s life. I understand where they are coming from and in turn I believe they can or should try to understand where I am coming from. Whatever else you might have to say about me, I  have done a good job of raising DC.  Of course there was help along the way but as a single mother going on 26 years now, most of it fell to me alone.  I truly resent the fact that we, as parents are being made to feel as if after all these years,  we’ve got it all wrong. I know that there are instances where we did have it wrong. When DC was young, there was not any where near the information and services that are available today. (See: Autism In the Old Days

I hope that a little insight into what comes after “school age” may go a long way in getting people to stop and think before making blanket decisions, accusations and statements that may not affect their child the same way it will affect mine. There has got to be some give and take. Everything does not work for every one.

Having said that, I have learned quite a bit from other parents by virtue of my blog. I don’t always agree with every opinion and my readers, I’m sure, do not always agree with me, but I truly believe writing this blog and getting some of the feedback has helped me see some issues a bit differently or at least why some parents see things the way they do. I can only hope I can and will be afforded the same courtesy; and so far I have.

Life tends to be very different when your child “ages out” of the school system and at other times, it is exactly the same. When you are waist deep in school, therapies, programs and IEPs, what happens after 21 is not high on your priority list. Of course it is a priority and of course it is in the back of your mind but, the here and now takes precedence. There are so many new and different issues to consider, and it all comes to hit you in the face much faster than you expect. Your views and opinions can change dramatically from what you hoped for when they were young and what you hope for now. Your life changes drastically, while not changing at all.

In an earlier blog I wrote:

“If I were to live forever, I would not change a thing about my son. He’s happy almost all of the time. He loves his life. He is in his own little happy world, but he won’t always be able to live in his own world, he will someday have to live in the real world. Then what?”

He will, someday have to live in the real world without me, which will probably mean a group home, because he is going to out life all of the adults I have in place to take care of him when I am gone. We need better programs, more funding for those programs and we need to have trained people working with our children in those programs. The news reports of the abuse and neglect of adults and children with autism by the people who are paid and supposed to be supporting our kids will keep you awake all night, every night.

So I will keep writing with the hope that a few people might read and think a little bit about the future. I would never say that spreading awareness is not a good idea, it IS definitely necessary, but…..

all of the awareness in the world is not going to keep DC safe and happy when I am no longer here to protect him…..

**********

Bug Spray Season

If you have been around here long enough, you know that DC dreads Sunscreen and Bug Spray season. He puts up with it some days more than others.

Come April or May each year, his job switches from indoors making dog biscuits to outdoors and the greenhouse. He loves the greenhouse, but the downside of this move is the dreaded Bug Spray and Sunscreen.

Since we have just moved into Bug Spray/Sunscreen season, I thought I would share a little story from last year. As if having to wear bug spray was not enough to throw him over the edge….. let’s just add something to make it worse.

#NobodyListensToMe

There are more examples than I can list … this is only the most recent example.

****
Most of you know that DC works in a group supported employment program.

During the spring and summer he works in their greenhouse and also helps to take care of the grounds/lawn.

You may also know that every morning I have to load him up with bug spray and sunscreen (which he <insert sarcasm font> thoroughly enjoys <end sarcasm font>).

Adding to the sheer annoyance of having me spray this stuff all over him every morning, there is also the issue of him not really understanding how to hold his breath so he is not breathing it all in. I do try to cover his nose and mouth AND we usually go out on the porch but he just can’t seem to move out of the cloud before he takes a deep breath.

I grabbed a few of these masks the other day from work to use temporally until I had a chance to pick up some not-so-cumbersome masks somewhere else.


The day I brought them home, DC and Doug were going to walk the trail with his ARC friends.  I told Doug to be sure to put some bug spray on DC before they walked. I gave him a mask and explained what it was for.


I wondered why Doug was taking the mask with him but I saw he was also carrying the can of bug spray so I just figured he was going to put it on DC when they arrived at the trail.


When they arrived home after walking Doug reported that DC hated the mask. His glasses were fogging up and he just couldn’t stand it.


Me: (confused by this)”How long could it have taken to put bug spray on him?”
Doug:
Me: “How could his glasses fog up in that small amount of time?”
Doug: “We only made it half way down the trail before he insisted on taking it off.”
Me: “Wait! You made him walk with the mask on?”
Doug: “Yes, you said it was for his allergies!”
Me: “No….. I said it was so he didn’t breathe in all of the bug spray”
(I mean, seriously…. what he heard wasn’t even close to what I said)
Doug:
Me: So did you at least put the mask on him while you were spraying him?
Doug: No, I put it on him when we started walking.


#NobodyListensToMe #YouCantMakeThisStuffUp

From: Facebook Status May 31, 2018

*****
After the initial Shaking Of My Head and “Wow! How did he get that so wrong” faded away, the next realization was:

I am sure that more than one person in the ARC Group must have wondered and asked why DC was walking wearing this industrial-style, cumbersome mask. I don’t have to even ask; I can hear and see it, clear as day – Doug’s explanation:

“His mother <insert head shake and eye roll>. You know how she is.”

No matter what he tells me, I know there was some amount of eye-rolls and “over-protective mother” insinuations on his part.

#GuiltyButNotThisTime