Our Kids Are People.

I have read and shared a couple of pieces just this week (here and here) about a subject that many people just do not seem to understand.

Our Kids Are People.

One might think that this would be something that should not have to be explained, but believe it or not, it is. Praising your child for spending time with or eating lunch with the SPED student or someone who is viewed as different is in reality, teaching your child that our kids are not people and that treating them as you would treat anybody else is cause for celebration.

*The TSA agent who decided that because DC is autistic, there was no reason to speak to him or treat him like a human being. He just grabbed him and patted him down. The mere mention of autism led the agent to believe that DC did not have to be treated as a “person”.

People do at times overlook him completely and direct their questions to me instead of talking to him. I do always ask him the question myself and make sure he gives the person the answer himself. I mentioned earlier in the post that I thought that there was no way on earth that the security guards did not understand even before I explained that DC has autism.  Now as I think about it, I wonder if they actually did understand and decided that due to his autism, they did not really need to talk to DC directly at all…… and THAT is a problem.

*The “Volunteer” that we will talk about in the post below.

*The people who refuse to even respond to DC when he attempts to socialize. It happens quite often.

These people have decided that DC has a disability and therefore does not deserve to be treated as a human being – he doesn’t know any better. Well, he does know. He can and does get his feeling hurt.

Along these same lines… if you or your child are going to volunteer for some sport or activity, please be sure you/they are doing it for the right reasons and remember that our kids are people too.

Originally Posted in April 2018 on the other blog:

Attention Awareness, you missed a spot

Doug works as a job coach in a transition program. Like the program that DC attended through our school system (18-21) but located at a local college, the program Doug works for is through that town’s school system and is located in their local college. Doug will also volunteer his time to DJ dances for his students.

While on our way to one of DC’s events, I asked Doug how the dance went the night before. He said that it went well. Then he began telling me that one of the college’s sports teams had to do some community service hours – I thought he was going to say that they volunteered at the dance….

…but no.

They opted to have dinner with some of his students in the cafeteria before the dance. Basically, they took 45 minutes < Insert Sarcasm Font> out of their busy day to have dinner in the cafeteria with these kids <End Sarcasm Font>.

So…….. having dinner with one of our kids is now considered community service???

I wonder if there will be a video?

Awareness……. FAIL!

******

After hearing the volunteer/dance story in the car, we arrived at DC’s event.

DC is a participant in a few sports teams. As with most of the teams he participates in, each participant is assigned a “Buddy” who carries their equipment, directs them to what they are supposed to be doing and where they are going and helps them out during the game.

DC has a buddy who does not acknowledge him at all. She doesn’t say hello, she really does not even look at him. I thought maybe she was just shy at first, but she has no problem talking to her two friends (who are also ignoring their participants for the entire time we are there).

DC knows he is supposed to stay with his buddy, so he got a little bit nervous when she and her two friends walked through the halls on the way to the gym in the front of the line and DC was way in the back (they are supposed to walk with their buddies). Later in the “holding area” where they were waiting for their turn, she stood with her two friends, back to DC who just stood there alone – the entire time. Twice I had to go and move DC over because she had his equipment over her shoulder and I was sure she was going to hit him in the face with it each time she moved. I thought maybe she would get the hint, but she did not. She never even acknowledged he was there.
This is not the first game where I noticed this and Doug (who notices nothing – his words not mine) actually brought it up to me more than once.

When it was finally their turn to play, they went out to the gym (no, she did not walk with DC), had their turn and then…….. she just walked out of the gym leaving DC standing there in the middle of the gym by himself. Fortunately I was close enough to get to him before he ended up in the middle of the crowd at the doors, where if he got that far, I would still be looking for him now.
She did not even turn around to see where he was – she just left.

I did report it via email to the coach (after we left the building because I just did not trust myself to be civil to this girl and just wanted to leave the area).

After I got over the whole safety issue of him getting lost in the crowd (I have nightmares of him getting lost in a crowd – always), I began to realize that this was not about her being shy, this was not about her not knowing what to do – this was about her treating him as if he were not a person.

A shy person would say hello. A shy person might maybe look in his general direction once in a while. A shy person would at least acknowledge his existence. She does none of those things…. not one. If you were there to see this, you would understand that this is NOT just a case of her wanting to spend time with her friends.

She treats him as if he does not exist, as if he is not a person.

You have to wonder what motivates her to even volunteer with this team.

Common courtesy would motivate a person to at the very least,  say hello. Apparently some people do not see our children as real people. This is a problem.

AWARENESS: Fail!

 

 

 

The End of The School Year

DCBarney

DC has been out of school since 2012. He walked with his class at the high school in 2010 and then moved on to the school system’s Transition Program for the two years between 18 and 21 (“school age” in this area is age 3 to 21 for SPED students).

The tiny boy with the bigger than him Barney lunch box seems like forever ago and not that long ago at all.

When, as the parent of a SPED student your life is pretty much all encompassed by the school system; IEP’s, therapies, fighting for everything (oh, the fighting), it is very difficult cutting the cord when it is all over.

Yes, there are still meetings – we call them IP’s now (no E for Education) and there is still the paperwork (which has more than doubled) but it was really a rude awakening. It took a few years for me to stop panicking when winter, spring, Christmas school vacations came around thinking I did not have a plan for DC, only to realize I did not need a plan because he was out of school and his program was year-round.  It was very hard to make a break from the school calendar.

I remember going with *Salli’s mom (and our caseworker) to look at the many Group Supported Programs in the area, trying to find a good fit for DC and *Salli for after they aged out of the school system. We saw many programs, good and bad.  I specifically remember coming home each week feeling drained and depressed. I did not say anything at first because I really just thought it was me being overly emotional until *Salli’s mother said the same thing to me one day. There was no more “school”, no more moving into the next phase in the school system – we were looking at the rest of their lives. This was it. This would be their life.

It just hits you in the face.

We have adjusted though, it was a long adjustment period but we have made the adjustment. Now I find myself oblivious to the last day of school and anything related to school.

I remember getting a message from one of DC’s friends and explaining, when I answered him later that day, that I did not want to reply while he was still in class.

DC’s friend: “It’s July. It’s summer vacation”

Yes, I am now officially oblivious to it all….

Except for the bus. I do, at times still call DC’s work transportation  – the bus.

Me: (Answering DC’s daily “I’m going home Nowwwww” phone call to me) “Are you on the bus?”

DC: No!

Me: (panicking a little) Where are you? Aren’t you on the bus?

DC: No!

Me: (panicking more) Where ARE YOU!

DC: In the car.

His adjustment is complete.

*****

Finish the Sentence Friday is a link-up where writers and bloggers come together to share themselves with a particular prompt (different formats each week of the month). Hosted by:  Kristi Campbell of Finding Ninee and Kenya G. Johnson of Sporadically Yours this week we are finishing the sentence, “It’s the end of the school year, and…”