DC Speaks – Doug’s 153rd Birthday and why Mrs. H is just so jealous.

DC has his own Facebook and Instagram accounts. Instagram is private and I only accept people I absolutely know to follow him. 90% of the photos on this account are photos taken of him by me or someone other than himself. The photos and videos he has taken himself are pages from whatever book he may be reading, food, princesses from either books or the computer screen and videos of YouTube videos of Cinderella dancing (spinning mostly) or other characters spinning. There’s a lot of spinning.

I set up the account for him because he enjoys looking at photos so much. Apparently he enjoys looking at them much more than he enjoys taking them.

His facebook is set for friends only. I thought it would be a good way for his cousins and him to connect. I also thought it would be a good way for some of his father’s family that might feel uncomfortable being “friends” with me, to keep up with what he is doing. A good number of his Dad’s family are friends with me, but he has other cousins (2nd? Once Removed? – I am never clear on that) that are friends with him there.

He is not allowed to write anything unless he asks permission first and then I stand there while he writes whatever it is he wants to write. I hold my breath when I notice a spelling error hoping he does not notice. I know I should correct him and I do if he hasn’t finished the sentence or paragraph and I do always correct him if he is writing anything else. But on a status post, if he notices a typo he will backspace and delete one letter at a time until he reaches the word he wants to correct and then type the whole thing over again. This could take centuries. He is not allowed to accept friend requests until I can figure out who the requester is. He does not post his own photos. I’m sure he could, but his friends will be inundated with photos of Judy Garland, Amy Adams, princesses and Disney characters.

He does go on Facebook on his phone to look at pictures of his friends. He is allowed to do that. So far and it had been 4 years, he has followed all of these rules. I check his phone and his account daily. Lately he is starting to lose interest in typing a status. He does not like to type to begin with, I thought this would help him get used to typing. He still, every once in a while will ask to write something or I will sometimes take a photo and ask him to write what we are doing, but not as often as before. He still does go on everyday to look at pictures though and as I said, he will still post a status or two.

I was thinking about DC’s past status updates and decided to go through and pull out some of my favorites.

(Translations and/or explanations are in parentheses – a few names have been edited – other than that, nothing has been changed or corrected)

So, in no particular order, DC speaks…….

 

-We Going to Anthony.s for Thanksgiving Dinner i want Tuckey Legs

– i Hate Snow

– i hate Snow . i like going to Work with Mom

– i Hate Snow

(I think he might not like snow very much)

– The Lights is On

– we Had Fun at Halloween Party. i am Happy. Be Brave For No Storm

(worrying about losing power)

– i am so Happy is Halloween

– we going to sleepy Hollow with ‘BB’ and and mom and doug i am so exciting

– i Like the Movies Trouble with The Curves

– i going to Dad.s wedding I am looking handsome

– going to grandmother. s and have some muffins

(“grandmother’s” – from Disney and other books)

– Happt collation

(Graduation)

– luau day like lilo

(Luau day at camp – the only thing he can relate it to is Lilo and Stitch, because Everything is related)

last day of camp was yestrday. i had a fun. i am going to grandmother.s today. a very merry unBirthday

– I went to hospital todat 

(See post about first time in Emergency Room)

– i am tired. i went to grandmas i went to winter guard show i did a good job i went to dinner with mom and doug and mom; s freind suzanne and her frien. i dance to wing it i am going to sleep now where has the time gone

– i ate alligator in new Orleans

– We having fun in Florida mrs h will be so jealos

(“Mrs. H. will be so Jealous” – there are quite a few of these. I did not include them all only because I could not find them all. Mrs. H. being jealous began 3 years ago when DC was in his last season of Challengers baseball and DC’s team was invited to Fenway Park for Challengers Day – All Kids Can. Mrs. H. had mentioned that her husband, Mr. H. was so jealous because he would have loved to go to Fenway. I don’t think DC really understood what “jealous” meant at the time, but he did know that he was doing something that Mr. H. wanted to do (I’ve since explained it to him many times in many different ways). Somewhere along the way Mr. H. being jealous evolved into Mrs. H. and it just went from there. I know as does she that he thinks jealousy is a good thing.

– I had turkey leg and turkey wing and bread. with mom and uncle smap and aunt lisa.
I like pie.
we going to lunch with uncle ted later after that.

– I want a turkey leg today

– phew.
I work at theater.
we went to the ball.
we ate dinner with uncle scamp and aunt lisa.
we went to camp Halloween party.

– We going to mountain of oz on Saturday.
We taking the airplane tomorrow have to get some rest.
I will see my family.
We going to dilly wood tomorrow if it does not rain have some fun

– I had fun time. Not New York City. Next week we going to New York City. Lots of food and book store

– Thank you thank you mrs .H happy happy Easter
I love jelly beans too

– I am happy to have my birthday
Today is my birthday,

– Mrs  H  will Be Jelous

(I don’t recall what she was so jealous about this time. That was all there was to the post)

– I love jellybeans too

– Have a Thanksgiving day. I don.t have work. i will have dinner With My Family. me and mom doug uncle scamp Aunt Lisa Erica I want turkey Leg

–  Mom fell down blood over her I did not take picture she is ok

(we were out walking our CharityMiles)

– I did good work at the theater to day I liked the dream girls show. I m not tired

– Happy Birthday to all
and to all a Good Wishes
Happy birthday DC
Tha;ts me

(It was his birthday. I think he was actually thanking people for the Birthday posts on his page)

– I am a ogre

– I am brave

(also storm related)

and my favorite…

– Happy 153 birthday doug

This ‘boy’ puts a smile on my face every single day…..

“Logic is the beginning of wisdom; not the end.”

...and yes, I do always have Spock ears readily available..

“Logic is the beginning of wisdom; not the end.” ~ Mr. Spock

From the post that I re-blogged yesterday: To Boldly Go…..

I admit it…

I am just a big old Sci-fi geek from way back. I watched the first episode of Star Trek back in 1966/1967 (?) and I was hooked – for life.

The first “sign” that DC learned when he was very young (for those of you that may not know, DC was non-verbal until he was 7 years old) was the “Live Long and Prosper” sign. If and when he saw a picture of Mr. Spock or heard him mentioned, he used that sign.

I’ve been in love with Star Trek and Mr. Spock since the very first episode aired back in the 60’s.

I loved the adventures in space.

I loved that all of the crew members were treated with respect and as equals.

I wanted a tribble.

I added new words to my vocabulary, most memorable –  “poppycock”.

I wanted to be a part of the crew, but not in a red shirt.

I loved everything about Star Trek.

I always had an affinity for the Mr. Spock character.  I loved his no-nonsense purely logical way of looking at things. I especially loved the episodes where he was confused and/or outright annoyed by human behavior – A piece of the action comes to mind.

I remember being sad when the show went off the air. But all was not lost! 10 years later “Star Trek the Motion Picture” was set to be released. I anxiously awaited opening day and although I admit I was a little bit disappointed in the film, I was thrilled to see all of my favorite characters again.

The movies that followed were so much better than the first “Motion Picture” and I saw each and every one of them more than once until the 2009 release of Star Trek the updated prequel. It was there that I stopped. Nothing against the movie or the actors. I’m sure it was and they were just wonderful. I just did not want to see new actors playing the parts of my favorite characters.

I  remember when The Next Generation was being advertised. I was outraged that anyone would try to create a new Star Trek even if the person creating it was Gene Roddenberry himself. How Dare He?!!! My boyfriend at the time, knowing how much I loved Star Trek taped it and brought it to my house for me to watch. I flatly refused. I would NEVER watch a “fake” Star Trek, Never!

Well…. never say never.

As it turned out, I loved it and every other that came after.

Not only was Mr. Spock my favorite character but I really loved Leonard Nimoy the actor. He was the only reason I was at all interested in watching Mission Impossible (the TV show).  I grew to love the show, but Leonard got me there. I will also never forget being glued to the TV watching “In Search Of…”.

I did at one time own the first, second and a few other editions of the Primortals comic books. I wish I knew what happened to them.

Then imagine my excitement when he showed up as William Bell on Fringe! Not to mention playing himself on The Big Bang Theory!

That Spock character resonates a bit more with me now than it did back then, if you can believe that possible. Having a child with autism has made me view Mr. Spock in an entirely different light. His matter-of-fact, logical, no grey area persona reminds me a bit of my son. It reminds me of the way many people perceive people with autism. However,  like many people with autism,  in spite of that matter-of-fact, no grey area, logical approach he had to life, his duties, his interaction with others, Mr. Spock showed compassion, empathy and yes, even friendship to those around him – in his own way.

Leonard Nimoy was one of my childhood heroes and I suppose you can say that I carried that adoration with me into adulthood. I was heartbroken to hear of his passing. There will never be another like him. It may be silly to you but I really feel that a piece of my childhood is gone forever – a small piece that I will never be able to get back.

Live Long and Prosper ~ wherever you may be.

“Of my friend I can only say this: of all the souls that I met on my travels, his was the most… human.”  ~ James T. Kirk

*******

And while you are still here, please check out another post from a friend of mine:

RIP Mr. Nimoy – from SSirica

I can see clearly now….

DC has worn glasses since he was 4 or 5 years old. Originally only for distance but he quickly took to wearing them all of the time.

I was a little bit apprehensive when it occurred to me that it was time to start taking him to have his eyes examined. He was not verbal at all and was not very cooperative with doctors. His pediatrician would strategically place wastepaper pails around the examining room when DC was due to come in for an appointment because he would work himself up to vomiting – everywhere –  every time.

Even now, though so much more agreeable, I do still have to bring reinforcements – his Dad and Doug, when he has to have a shot The 4 of us go marching into the examination room along with a nurse and the doctor. As hard as we try, we can not hold onto this boy.  The doctor really just ends up chasing him around the room in the hopes of getting a lucky shot.

I will always remember a little girl that was in DC’s Birth to 3 class. She was just a tiny little thing, with the strongest, thickest glasses I have ever seen. She, like DC was non-verbal. Even with those thick, thick glasses, the teachers had to get right up in her face so she could see them. I remember one day, walking into DC’s classroom to visit (I worked 5 minutes away and visited often) and there she was without the glasses! Her mother explained that she had changed eye doctors just recently and the new doctor had determined that she did not need glasses at all, she never did! So needless to say, I really wasn’t looking forward to having DC’s eyes examined.

Yes, he could sign the letters on the eye chart but if he was not in the mood to cooperate that day – how would we know if what he was signing was actually what he was seeing? Before we even get to that point, how could I explain to him that we wanted him to sign the letters he was being shown?

I finally thought I found a doctor that understood the situation and brought DC to his first appointment. The doctor did say that his vision was not 20/20 and he would probably need glasses eventually. It would be helpful but not 100% necessary at this time. He did suggest that I may want to do it now so he had the chance to get used to them. That is what I did.

dcglasses

It really did not take that long for him to get used to the glasses and his teacher reported that he was much more focused in the classroom. I must say, he is and has always been very good with his glasses. He has not lost or broken any pair he’s had over the years (knocking wood).

After a couple of years and after a few screw-ups, we switched to another doctor in the practice.
This worked out well for awhile, but eventually, after so many issues that you might think were a work of fiction if I wrote them down- we left that practice altogether and not very quietly.

The last few times DC needed a new prescription and while we were still going to the doctor mentioned above, I opted to just change the lenses in his frames. Some changes are not all that difficult for him , but when it comes to glasses, shoes or switching seasonal coats and jackets, he has a hard time. It was becoming apparent that these frames were not going to last very much longer, so it was time to find a new doctor and get new frames, whether he needed a new prescription or not.

We found a new eye doctor that came highly recommended by my brother and sister-in-law. It was just amazing how smoothly this appointment went. I did not even have to explain to the doctor that given the choice of two options, he will almost always choose the last one, just because it is the last thing he heard. We were in and out in less than an hour, where as if we had gone to his previous doctor, this exam would have taken two very long visits and then the follow up visits to correct what they had done incorrectly.

Our previous doctor had an optical shop on site. This new doctor did not, so off we went to a department store where plenty of other people I knew bought their glasses. We started the process of trying on different frames.  As expected, DC was anxious.  He yelled “No!” to each and every pair that he tried on. Now it is never really clear if he just does not like the frames or if he is saying “no” because  the sample frames just have regular glass in them and he can’t see. I have tried to explain this to him many times, but I am really not sure that he understands.

I do not know if he was just tired of trying on frames or if he actually liked the pair that he had on his face at that moment, but he finally said “Yes”! The girl who was helping us was so very excited – “He said ‘yes’!” . Once she said that out loud, he went back to “No”.  I had a “yes” for a minute, I wasn’t going to let it go that easily. I asked him to look in the mirror. He did. A customer that must have been listening to this whole exchange (how could one miss it?) told him that he looked very handsome in those glasses. He was sold.

We sat down to place our order. At this point DC had enough and it was time for a panicked sprint to the restroom with me running behind yelling for him to slow down, as he raced to the other end of the store. He does this when he becomes overwhelmed. It is also his way of trying to get out of doing something he doesn’t want to do. I assumed I was in for the long haul as much of my life is spent standing outside the men’s room or yelling into the men’s room. To my surprise, he calmed down relatively quickly for him, but I am certain the girl waiting to finish our order was probably thinking we had skipped out on her. We finally made it back to complete the order and were told his glasses would be ready in less than a week.

I got the call 4 days later that his glasses were ready to be picked up. I didn’t want to wait until the weekend to go as his glasses were on their last legs, so I asked Mrs. H to take him after he got home from his program.

I was home from work by the time they arrived home. DC walked in wearing his old glasses carrying the new glasses in the case. He didn’t realize that now that he had the new glasses, he was actually supposed to wear them. I don’t really know what he thought he was supposed to do with them, but wearing them was not on the list.

Old wire frames

Old wire frames

I asked to see them. I asked him to put them on and explained to him that his old glasses were ready to fall apart and he should start wearing the new ones. He put them on and I put his old glasses in the case and stored them away just in case we ever needed a temporary pair. He was fine for a little while, but later came into the kitchen looking around very determined to find something. I asked what he was looking for and he replied “Glasses”. He was looking for his old glasses. He still did not understand that he was supposed to be wearing the new ones.

I really was beginning to think that this was going to be more difficult than I originally thought. I explained again that his old glasses were going to fall apart and this is why I bought him new glasses. He has to wear the new ones. He should be able to see much better wearing the new pair too.

Just like that, he left the kitchen and never asked for the old glasses again. I was impressed. This had to be the easiest transition to anything we’ve ever experienced.

First he chose frames that were dramatically different from the old frames and then after only an hour or two, let the old pair go and never looked back.

New Black Frames

New Black Frames

 

 

 

 

February reruns… How do you do?

It’s been one of those weeks…… Enough said….. and just because I needed a laugh, I decided to post yet another rerun. The following was posted back in April 2013 – but it still makes me laugh….

“Please allow me to introduce…..”

Pleased to meet you DC loves to make introductions. I don’t believe he really understands the point of introducing people. He notices people making  introductions in the movies he watches and in the books that he reads. It doesn’t matter if the people he is introducing already know each other. It doesn’t matter if he knows they already know each other, when he gets to urge to make introductions, he does. He is usually very formal about it as well – “I would like to introduce my mother, Vickie Lastname” or “It is my pleasure to introduce to you, my mother, Vickie Lastname or (my favorite) “Please allow me to introduce my ‘lov-er-ly’ mother, Vickie Lastname Recently we attended a pasta dinner fundraiser to benefit the summer camp DC has attended since he was 5 years old. We purchased enough tickets for DC, Doug, my mother and myself and we sold a few more to friends and family members. Seated with DC and I were, – My mother (DC’s grandmother) – Doug (who was also pulling DJ duty) – DC’s grandparents on his Dad’s side – DC’s Dad – Tracy – DC’s stepmother (His Dad’s wife. I generally do not use the stepmother title to describe her because DC is so very much into Disney that there is no explaining to him that all stepmothers are not evil) Karr-ee-anna – in DC-speak -DC’s Aunt K -Her husband R – My friend Tonya – and DC’s friend, Salli Due to the crowd, Doug’s father and sister had  moved over to the next table. DC was very excited that everyone was there at the same time. He sat at the table as if he were “holding court”. He then decided that introductions were in order. Turning his attention to his father, Tracy: “Tracy, this is my mother Vickie Lastname” and “Vickie, I would like to introduce you to my father, Tracy (same) Lastname” ~ Insert Dramatic Pause ~ Me:   “Um……. “we’ve met……………………..”   Photo: Credit "Tonya"

I got the music in me….

(Not “proper” grammar, I know. Talk to Kiki Dee)

DC is the ultimate music lover. I love this about him because I too have always been a music lover! Our tastes differ greatly. If one were to look at my music file they might just think it was a file belonging to 4 different people. I love everything from The Osmond Brothers “Down by the Lazy River” (my Happy song) and the Spinners “It’s a Shame” (my other Happy song – I dare you not to dance!) to Alice in Chains and Shinedown. Of course, being the geek that I am, I also have to have the Firefly, Dr.Who and Angel TV themes readily available.

DC leans more towards Musicals, Disney and some top 40. The battles in the car over the radio are actually the reverse of most parent and child “radio battles”.

We do, have some music in common though. When DC was a baby, he was not your average lullaby baby. It took a lot of trial and error to find songs that he enjoyed before bedtime. – This was, of course back when he wanted to hear me sing. Now all I hear is “Mom, please stop singing!” (unfortunately, he doesn’t always get his wish)

I just happened to hear both of the songs below on the same day, last week. Because I rarely hear either one of them on the radio, never mind both – it sort of inspired this post.

His favorites were:

James Taylor – Sweet Baby James (I happen to be a big James fan so this was fine with me)

and

Loggins and Messina – House at Pooh Corner (another “win” for me)

I am surprised that he still remembers them, to this day.

During our recent vacation the subject of DC’s first flight came up in conversation twice, first when we were having dinner with his Dad and again while having lunch with “Pinky” and her family.

DC was almost 2 years old. We were flying down to Savannah, GA. and DC was not having any of this! It was unbearable for us and I’m sure, much worse for the other passengers. This was also back in the days when you were required to hold your children in your lap. This actually worked in my favor because I could sing into his ear with out traumatizing the rest of the passengers with my voice.

“Do your ears hang low?” and only “Do your ears hang low?” was acceptable to DC on this flight. Over and over again. I could not switch to another song.

There was also the time we were driving home from a weekend in Maine – he was probably a year and a half old. This ride should have been our first indication of how the flight would go months later.  I was required to sing “Who are the people in your neighborhood” for hours. I could not deviate from that song. I sang it so many times that I made up an extra verse on the spot. I wish I could remember it as I have to say I remember it being pretty darn good – if I do say so myself.

Music has always been a source of calm for him. It still is. It is also a source of joy. If he is not reading a book (or “playing computer” on the weekends) he is singing and dancing all over the house. Oftentimes he is reading or watching while singing and dancing.

I am so glad that he shares my love of music but more importantly that it is something that can calm him down and soothe him when he really needs it.

– Okay, admit it, you danced to the Spinners………….. I know you did. 

Full Versions (because who wouldn’t want to look at James or Kenny again)

House at Pooh Corner

Sweet Baby James

and the others:

Who are the people in your neighborhood

Do your ears hang low?

Bacon

bacon

DC’s reactions are not always immediate. Due to these delayed reactions, it is not always easy for me to figure out just what is going on or what the problem might be.

When he was 4 or 5 he stopped eating – completely…. for close to a month. He would not swallow solid food.  With a lot of  coaxing he would put it in his mouth, but that was as far as it went before he would spit it out. After a few visits to the doctor to be sure this was not a medical issue, I, with the help of his teacher and IA, started looking for ideas to get him to eat again. I bought all of his favorite foods. They worked with him in the classroom. I even resorted to candy. Nothing!

One day, I was making him a steak, one of his favorites at the time. It was right then and there I realized what was going on. He actually looked frightened of the steak. This wasn’t a sensory thing, it was fear. After seeing the look of utter terror on his face I remembered a choking incident with a bagel one morning about a month before. The thing about it was that he didn’t react right away – otherwise I would have figured this out much sooner. He was fine afterwards and even finished the bagel he was eating.

I couldn’t pin-point exactly when or why the delayed reaction kicked in but it did and he was afraid to eat.  Once I figured out the reason, I was able to help him get back to eating solid food again. We started with pudding and yogurt and just dipped the tip of the spoon in, just so there was a taste on the spoon. I continued this way, increasing the taste on the spoon until he was taking a regular spoonful. I added other foods like applesauce to the menu. When that part was behind us, I started breaking up bread, into almost crumbs, until he realized it was safe for him to eat again.

DC used to ride horses. He rode once a week for a good 5 years, if not longer. One day his teacher had him riding in the outdoor rink (I’m sure there is a proper name for that, but I am calling it a rink) – he didn’t ride in the outdoor rink very often. Most of his lessons were inside. When he did ride outdoors, it was usually down the driveway, across the street and up the dead-end road and back. On this particular day in the outdoor rink (seriously, Kathleen is not going to be happy that I don’t know the proper name), his horse spooked, reared up went galloping wildly. It scared him, it scared me, but he stayed on and continued his lesson with no problem.

His indoor lesson the following week went well. His ride outside on the driveway route was fine too. It had to be a few months later when they tried to take him out to the outdoor rink that the fear kicked in. He wasn’t having any of it. He acted like he was never on a horse before. After thinking about it for a minute, I remembered and explained his reaction to the assistant. He was a little better once they went back inside but not at the level he was at the beginning of the lesson. The outdoor rink brought out his fear and that fear carried over to the indoor rink. It took a while for him to feel comfortable again.

About a year later his horse spooked during his inside lesson. Again, he seemed fine – Me? – Not so much. I was close to heart failure, but I didn’t let him see that – and rode the full hour as if nothing had happened. But… the following week he was terrified. He continued to be terrified until we finally just gave it up altogether. even though I was relieved to let it go,  it was a shame because at one time he really liked it. Horses were one of the few animals he was not afraid of. He was actually pretty good at it.

lm

So… over our Christmas vacation, DC got sick. Other than his bouts with his allergies, he rarely gets sick, but when he does, he really goes big! For a good few days afterward, he really didn’t want to eat at all. He seemed fine otherwise so I wasn’t really sure if he was still not feeling well or if he was just afraid to eat. I believe and still do, that he was #1 – exhausted from being sick and #2 – he was afraid and relating his illness to food. As we were on vacation and eating in restaurants daily, this was probably at least partially the case. He was eating lots of things that he doesn’t normally eat, at least not on a daily basis.

When he did finally feel like eating at little bit, there were certain foods I wanted him to stay away from so as not to upset his stomach all over again. He continued to be a little bit leery about eating for a good week after we were home. Last week, after going to see the Buddy Holly Story with his friend, BB, we all went out to dinner. DC ordered a cheeseburger with bacon. When it arrived, he removed the bacon and left it on the plate. I asked why, but I couldn’t get an answer. Now, I am almost positive he had bacon at least once since we’d come home from vacation, so I didn’t really think all that much about it.

DC discovered bacon a few years ago on a cruise ship and like his garlic bread, takes every opportunity to order it. I used to buy it for him, but decided that he really did not need to eat that much bacon, so I let it become one of his “restaurant only” foods, like cheeseburger and fries.

This week, at the hotel where we were ‘Snow-cationing’, bacon was available on the breakfast buffet. I didn’t really notice it until morning #3, but there was no way that DC had not seen it on the previous two mornings. I asked him if he wanted bacon. He started signing “all done”, a sign that he still uses when he REALLY does not want something. I asked him if he was sure. “No, Bacon!” – while signing more adamantly. “I don’t want to get sick! I don’t want to get sick!”.

Bacon had been one of the things I did not let him have after he got sick on vacation. Now, in his mind it was the reason he had gotten sick. There were a couple of other people in the breakfast room and I didn’t want him to continue yelling about “getting sick”, so I explained quickly that he did not have to have the bacon, but bacon was not the reason he became ill on vacation. He was getting more and more anxious about it, so I just let it go.

I know that some may disagree, but bacon is not really a necessity in anybody’s life, so I am not going to push it.

Now if I could somehow get him off the cheeseburgers and fries…….. hmmmmm.

Snow-cation

2015/01/img_8236.jpg

Our preparation for the Blizzard of 2015 consisted of packing our bags and booking a hotel room. I wasn’t taking any chances. I wasn’t really concerned about this storm until I received a robo-call from our utility company warning of power outages. You might remember that back in October 2011 we lost power for 6 days.

The following year we had a few pretty big storms. One in particular dropped a couple of feet of snow on us. We did not lose power but we were trapped for 4 days.

We live on a cul-de-sac. Usually the town comes to plow the road, but only to the edge of the cul-de-sac. Later a smaller pickup truck comes to finish the job but it is usually somewhat of a wait.  When day 1 came and went, I didn’t think all that much of it. On day 2 the town announced that all of the roads would be cleared by the following day. Day 3 – nothing – I started calling Public Works to a “full voicemail” message and finally no answer at all. We were left trapped in waist-high snow with no one to contact as the rest of the town offices were closed. Finally on Monday (day 4) I called the police, only to find out that they had our street marked “complete”.

I reasoned that if the power did go out the hotel should have a generator so at the very least we would have heat. If they did not have a generator, at least we would be able to get out of the place and not be trapped in waist-high snow for days on end.

I explained this to DC, leaving out the “power-outage” piece of the story.
As you also may already know DC usually loves nothing better than a hotel room. I thought he’d be excited.
On Monday morning we packed up what we thought we would need for the next few days and headed out to my office. DC loves to come to work with me so he was thrilled.

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He was a tiny bit anxious about the snow but nothing really over the top. Doug came to meet us at work so that I could follow him to the hotel which was just over in the next town (someday we will talk about my sense of direction or lack thereof).

We arrived at the hotel and checked in. DC was getting himself set up at the desk as he always does, when he discovered he had forgotten the cord for his laptop at my office. I won’t go into detail about the chaos that followed, just believe me, it was a tragedy. Doug went back to get it before the roads got worse and DC, while continuing to perseverate about his cord, kept himself busy with you-tube on his phone. One would have thought Cinderella entered the room when Doug came back with that cord!

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A couple of hours later he really began to get anxious, asking over and over again when he could go home. I realized that although I explained all of this to him and that this was certainly not the first time we left and stayed in a hotel due to an upcoming storm, he was still very confused. I thought about how different this ‘trip’ was from the last storm trip.

  • Our previous trip to avoid a storm (although I was sure we’d be sitting in a hotel room for 3 days) turned out to be much more of a ‘real’ vacation than just an  escape from the storm.
  • We packed, went to work and left from there – he didn’t get to go home first.
  • There was a travel ban in effect so there would be no dinner at a restaurant.
  • He was very concerned about going to his friend BB’s on Friday. It was on the calendar, you know.

I told him that I understood why he was a little bit confused. I explained that we were on a “Snow-cation”. We had come to the hotel so we didn’t get stuck in our house. I also explained that the hotel was very close to our house so he did not have to worry about going to BB’s house. We would be home before Friday (I wasn’t ready to mention a specific day for him to obsess over). I did finally have to mention the threat of losing power as another good reason to be “Snow-cationing”. He liked the word “Snow-cation” and the threat of a power-outage seemed to do it for him.  “Confused” became the word of the day. He used it anytime he needed the explanation again. It was comforting for him to have a word to use to explain his feelings and he felt better about expressing his confusion because I had told him that I understood. So, even though I had to explain our “Snow-cation” a few more times, he wasn’t as anxious about it.

He was able to use his computer, he read and edited some books, he went to the gym and went swimming in the pool. It was like a vacation (of sorts) to him. He was much better and a little less confused about everything.

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I’m not sure that he really understood how close to home we were. Even though it was only a 20 minute drive from my job. I think that the mere fact that we were in a hotel, meant distance to him.
He was concerned about his work and going to BB’s house. I did point out a few other places in this town that we visit often as a point of reference as to just how close we were to home, but I’m not quite sure he understood.

When I was relatively sure that all was clear, our street was plowed and we had electricity at home, I told him what day we would be heading home.

“My ‘Powers’ is back” – apparently all of the explanation I had given him only led him to believe that the power was out at home –
“Yes, DC, your ‘powers’ is back”

When all was said and done, we did not get as much snow as they predicted, some parts of the state did, but we ended up with a little more than a foot. Still a foot is a foot, and I would opt for the “Snow-cation” again and now that DC worked through his anxiety, I think he would too.

If you knew…. Peggy Sue..

DC is not always a fountain of information. Most of the time it is very difficult pulling information out of him.
A few weeks ago, he left for his volunteer job at a local theater at 5:00pm (with his job coach, Mrs. H.). Volunteers have to arrive 2 hours before show time to put the programs together for that performance and to get their assignments for that evening. DC is almost always assigned as a greeter – he passes out the programs to the audience members as they walk in and recites his line “Enjoy the show”.
At the beginning of each season, when I have to pick the dates he is available to work, the name of the show is not available – probably because they do not want the volunteers to choose only by what show they may want to see. I also have to work around his schedule and Mrs. H’s schedule, so I am really just looking at dates and nothing else. This particular show, as it turned out was Alton Brown from the Food Network. When their beginning of the show greeting duties are over, many times the volunteers are able to sit and see a good portion of the show.

At 9:45 I received a text from Mrs. H. I assumed it would say that they were on their way home, but no…. it said “We’re still here”. They finally arrived home at 11:00PM – After being there for 6 hours, the only information he gave me was:
“A man making ice cream” – that was all he had to say…
My friend Bill responded to my non-information post with:
“I LOVE it, with all that Alton does and his wild energy, DC found the most memorable part of Alton’s show! You could start a new Blog called “DC’s Cliff Notes of Live shows at the theater!” I love how our guys and gals simplify what they see and hear into something that is truthful & concise!”
So true….. and I may just do that, but the reviews just may be very short.

DC, his best friend BB and I had tickets for the Buddy Holly Story yesterday. DC did work the performance the night before, but he was excited to see the show again with BB.

On Saturday morning, DC was concerned due to all of the snow that had already fallen (5 inches) when we woke up:
tembling

Despite the snow, we made it.

They both just loved the show. They had a great time.
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This morning, DC was full of information and chatter about the ‘wonderful’ time he had yesterday. I was there but he was determined to tell me about it anyway, and I’ll take it…. it was unprompted information.

So in DC’s words, his review of his day:

I had a nice time last ‘even-ing’.
I went to see Buddy Holly Story with my friend BB.
We danced and danced and danced.


We had a scared of fright – jump up – PHEW!
America the Beautiful favorite song.
I went to dinner and Donna and John and Mom – me too!
Perfect!

Translation:
“We had a scared of fright – jump up – PHEW!”
Fortunately we had box seats as DC jumped up as if he could not control himself any longer, to dance. I mentioned to him later that he scared me because he jumped up so fast. He was using part of his favorite phrase “You gave me a fright” from the Lindsay Lohan version of the “Parent Trap”.

“America the Beautiful favorite song”
DC does have a love for all patriotic songs. He even has a sign language dvd of only patriotic songs, but I suspect that he chose it as his favorite from the show because it was really the only song he was familiar with.

“I went to dinner and Donna and John and Mom – me too!”
Because the snow was supposed to be much worse than it turned out to be, BB’s mom offered to drop us off as her car is much better in the snow than mine is. We all went out to dinner afterwards.

So there you have it, DC’s review of his day. I know he had a great time as he is still talking about it.

As for the “blind scheduling” method for volunteers at the theater, I just received DC’s schedule for the second half of the season. The first show he is scheduled to work is “50 Shades, the Musical Parody”.

I think DC and Mrs. H will be hanging out in the lobby for that one………….

January reruns – Scotch Tape, Salt and Some Good Old Fairy Dust

In keeping with my winter rerun theme – remember back in the day when TV shows went into reruns during December and January instead of being replaced by something new? – I am re-posting an older blog from 2013, because, really…nothing has changed…..

I am still hiding pens, hiding scotch tape and keeping salt and pepper shakers out of sight – which means the Dr. Who salt and pepper shakers I received for Christmas are displayed on the shelf….. empty….. sigh

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From February 2013:

Everyone needs a little “fairy dust”

Everyone needs a little Fairy Dust

Harassing my co-workers for their paper towel rolls for a project this week, made me think about the reasons I don’t buy paper towels myself. This then led me to think about all of the other things I don’t buy, have to hide or make adjustments to, around the house.

Shampoo: This is no longer an issue, but at one time and for many years if I forgot to take the shampoo out of the shower, most of the bottle would be used to paint a masterpiece and the rest went down the drain…… every time.

Paper Towels: Paper Towels are for shredding and only for shredding. On the rare occasion that I do buy them, they have to be hidden on top of the refrigerator. Hiding the paper towels makes them not very convenient for me to use and forgettable, so there really isn’t any point  in buying them at all.

Paper: Every single piece of blank paper in the house has a Disney character’s name written on it. Teachers, Camp councilors and  anyone else I have to write a note to, receives that note on our exclusive custom stationary. After a few weeks of notes to camp, the Director finally asked “Do you guys do ‘A Character a day or something’?” No, unfortunately nothing that creative, I just can’t keep the paper out of the hands of my in-house stationary designer.

Construction Paper: Construction paper is also used specifically for character names, BUT according to the rule made up in his head,  these sheets can not and will not be saved. They MUST be cut up into small pieces with scissors and spread out all over the floor. He must also write on each sheet of  an entire package of paper before he begins the job of shredding/cutting. A few pieces just doesn’t do it. A package of construction paper will only last an hour or two after it has been opened.

Old Grainy picture of DC surrounded by shredded construction paper.

He has been a bit better with the construction paper lately. He still writes his character names. He still will not save them as he does with plain white paper, but now at least, he rips them up, one at a time and throws them away. –  (say it with me….) Progress!

Baby wipes (or hand wipes): Wipes are used for “Cinderella chores” ; washing the floor and door. This could actually be a good thing if he didn’t use  20 of them to wash the same spot on the same floor and the same spot on the same door. We don’t buy wipes anymore.

Scotch Tape: Scotch tape can be used on anything and for anything. For the most part, it is used to tape up pages in his books. Some books require an entire roll for just the smallest tear. Scotch tape can also be used to build a drum out of a cup or a bowl. He covers the top of the cup or bowl with tape….. a two roll minimum of tape, and this is his drum. Yes, creative, and yes he figured this out by himself but now I have to hide my tape in the cellar if I hope to find any when I need it.

His very own scotch tape is now an item on all of his Christmas/Birthday lists. One friend in particular has been very creative with her gifts of scotch tape. He just loves them!

Scotch Tape: For the boy who has everything!

Pens: No matter how many pens I hide for myself, I can not ever find a pen. He has all of them…… somewhere, I don’t know where and he is not telling. He will return the pens that don’t work –  those are always readily available.

Buttons: If there is a button there, it needs to be buttoned. Years ago I thought I was being sneaky by removing the top button on all of his shirts so he would not insist on buttoning everything right up to his neck. I discovered I was not as slick as I thought I was one day when DC brought me one of his shirts to have the button removed. He knows there should be a button there and knows I’m cutting it off, but for some reason this is alright with him. Leaving it on and not buttoning it, is not.

Other clothes: All tags must be removed from all clothing. If he should find the smallest rip, tear or string, he will proceed to shred that article of clothing. It may take him all day, but he will make sure it can never be worn again. Just recently I mistakenly bought him a pair of jeans that had ready-made tears in them. When I realized, I was sure this would be a disaster, but for some reason, it was fine with him. He wears them quite regularly…….. figure that one out. I can not!

Salt: We do not keep salt or sugar on the table. Salt is used as fairy dust. If it is not being sprinkled on his food, then there is no other use for salt, except to be used as fairy dust. Crumbs, the cereal dust at the bottom of the cereal box, crushed chips and a number of other items can also be used as fairy dust, but salt is the ultimate in fairy dust.

I’ve been “Fairy-Dusted” many times, so has the kitchen, the living room, restaurant tables and his uncle when, a few years back, DC got his hands on some cotton candy sugar at a picnic (Cotton Candy Sugar = Pink and Blue Fairy Dust; what could be better!)  Delightfully he took a very large handful and “dusted” his Uncle’s head yelling;

“Think of a wonderful thought” 

Who doesn't need a little Fairy Dust every once in a while?

His Uncle didn’t get it……..

But really…..who couldn’t use a little fairy dust every once in a while?

(He is better with salt these days, but I  will not keep it on the table, it is just too much for him to resist)

Everything is related – Mary Poppins to New York City

I threatened in an earlier post – a few of them as a matter of fact – I would someday write about how, in DC’s world, everything is somehow related to Disney or some of the other movies he enjoyed as a child and still enjoys now as an adult. Originally I thought this would just be a fun post to write, but the more I thought about it, the more I realized:

Everything being related,  has, many times been used as a learning tool.

– Everything being related, has helped him to move on to a more diverse realm of TV shows and movies (while still loving all of the originals he has loved since he was a baby). When attending an ARC movie activity or even just a movie night with friends, for instance, a Disney or animated movie may not be the choice of the others attending. Relating one movie or actor to another has helped him to be more open to watching something that may not be Disney-based. This was not always the case, but now he can go and enjoy a movie with his friends or at an ARC activity without issue. I can almost always find a “sixth degree of separation” from something he loves to something new ; at times it can be a stretch, but I can usually find it if he doesn’t find it for himself. These days, because he now knows that there is always the chance that something or someone just might be related to his favorites, and now that he realizes that his favorites are in many other movies than the ones he watches over and over again, he is much more willing to watch any movie with his friends, without the preparation beforehand. He has also discovered new favorite actors and movies that had not previously been in his circle of favorites.

Everything being related, oftentimes just explains his love for a particular city, game, song or some of the many other things that he does or says. – This post is about just that……

So here is the first in a series of “Everything is Related” posts:

It all started with Disney…. Those little half hour Disney Sing-A-Long VHS tapes. You know the ones…
“Come right in, sing a long, with your favorite Disney song……”
They contained many songs from many Disney movies – old and new.

At about a year old he moved on to the full length movies.

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Mary Poppins and Bert 2003

Mary Poppins –

Mary Poppins songs and clips were  included in many of his sing-a-longs videos.

Mary Poppins= Julie Andrews

His love for Julie Andrews led him, through the years  to “The Sound of Music”, “Eloise at the Plaza”, “Eloise at Christmastime”, “Shrek 2 and 3” (although he did develop a love for Shrek all on his own – Julie Andrews just added to it), “The Princess Dairies” (all)  and “Tooth Fairy”.

We were at a friend’s house for movie night one evening. The movie they chose to watch was  “Tooth Fairy”. His friends were excited to see this movie because of “The Rock”. DC on the other hand, was excited because it also stars  Julie Andrews . He did not know of or care about “The Rock”.

This soon changed when he discovered that “The Rock” was in “Race to Witch Mountain” – he has seen and owns all of the old original versions of the “Witch Mountain” movies and now “The Rock” and “Race to Witch Mountain” has been added to his collection.

– Still on the subject of Mary Poppins, we have – Dick Van Dyke

Dick Van Dyke led him to “Chitty Chitty, Bang, Bang” , Night at the Museum (s) , “Bye, Bye, Birdie” and most recently, “Alexander and the Terrible, Horrible, No Good, Very Bad Day“.

– “Full House”

Just how is this related. you ask? DC loves Full House. He has every single season on DVD. He first came across the show on TV one morning – the episode airing just happened to have Annette ‘Fun-chew-lo’ (Dc-speak – ‘Funicello’) guest starring. Annette ‘Fun-chew-lo’ just happens to star in another one of DC’s favorite Disney movies  – “Babes in Toyland”, (can we say “worst movie ever”?)  also starring Ray Bolger from the Wizard of OZ (we will get to OZ another time).

He was a Full House fan from that point on. – But how is this related to Mary Poppins?

A few years ago we were watching the Macy’s Thanksgiving Day parade. We turned it on just in time to see  a performance from the cast of the new “Bye, Bye, Birdie” revival – and who was playing Dick Van Dyke’s, ‘Albert’ in that revival? None other than John Stamos (Uncle Jessie)! Well….. of course we HAD to go – we were due for a day trip to New York anyway.

I will never forget DC sitting in the audience pounding his leg with his fist mimicking the “Jes-sie, Jes-sie, Jes-sie!” chant.  I did everything I could to get him to stop but he was “in the zone” and determined to continue. I could see,  he was finding it very hard to control himself.  I really thought I would have to take him out of the theater. He did finally get himself together and enjoyed the show quietly (as quietly as he could manage). – So “Full House” is related by both Disney as a whole and Mary Poppins.

Let’s not forget, Ann Margaret also from “Bye, Bye, Birdie” – who also plays ‘Cinderella’ in the 10th Kingdom. The 10th Kingdom starts out and ends in New York City, with the City being the 10th Kingdom.

10th-kingdom - Everything is related - NY City @tasanotherstep

 

Ed Wynn (Uncle Albert in Mary Poppins) is also the Toy Maker in “Babes in Toyland” (again, I say…… worst movie EVER – who’s with me?) and the voice of the Mad Hatter in Alice in Wonderland. Not only does DC know all of these actors and their names, he can also tell you who was “the voice of” almost any Disney character.

His love of New York City stems directly from Eloise at the Plaza, therefore we must visit the Plaza just about every time we go.

 

 

Our trips to the Plaza now include a visit to the “Eloise Store” where items are ‘Rah-ther’ expensive. Of course now NY means so much more to him. It means Broadway and many shows, including “Mary Poppins”. It means ‘Set-tral Park’, Toys R’Us, Times Square and we can’t forget “West Side Story”.

He is without a doubt, my Broadway Baby, and it is all due to his love of Disney and more specifically,  “Mary Poppins”