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Communication, Paper Towels and other nonsense

 

Pants on Fire

There are times when, we, as parents of children or adults with special needs, do have to go to extremes or try many different tactics to get information from our children. Communication is not easy with my son.

IP Meetings (No ‘E” since he’s left the school system)

6 month IP (no “E”, he’s out of school) review meeting this morning – <insert sarcasm font> Can’t think of anything that I would enjoy more! <end sarcasm font> #FunTimes #WeDropTheEButTheFunRemains

I want a job like that.. A Vent

Since the 23rd of March, my case worker has been trying to get in touch with the person who missed our last meeting.
I explained to my caseworker that it has been my experience that her MO is just not to reply to anything until you get tired of asking and give up…

“Maybe It’s Allergies?”

It is allergy season and as much as I have been suffering, DC does not seem to be (so far, knock wood) all that much. He had a few days (so far, knock wood) of coughing and sneezing but compared to last year at this time – it’s been cake ….

There is extra sunscreen in his backpack

You may or may not remember that a couple of years ago I had a very difficult time getting the people at DC’s work/day program to understand that he has seasonal allergies (see below if you want to catch up). Much of the problem is that the people I talk to in his annual meetings or at any other time, do not seem to pass any of the information on to anyone else that is working with him.

More #TalesFromTheDayProgram

I read a note in DC’s “Talk Book” on Thursday…
“DC was a little bit upset this morning” … that went on to explain how upset he was, what he did and that they did not know what it was all about.
Now, if this had been the morning before after two random meltdowns, I would have understood, but that morning he was just fine when he left for work.

Quarantine Diaries: Part 25 – The Road to Normalcy?

It has been a minute since I have written anything. I would not have imagined, being home for so long that I would not have the time to write. I cannot really say where my time is going, but it is. Also, our internet has been torturous over the last few months and not having the patience to wait for it may also have something to do with not writing (or reading).

The Day Program: Communication and Gloves

A few years ago, DC sprouted a rash on his face and the back of his hands. I realized that he had been at the dentist and because he liked the blue gloves they used, they gave him a pair. While wearing them, he kept rubbing his face. I suppose he liked the way it felt.

The Day Program: Communication & Allergies

Back in January – the day after New Years Day as a matter of fact (which also fell on a weekend) I took DC to the walk in clinic because I was convinced he had a sore throat. He would put his hand on my shoulder and brace himself before he swallowed.

The Day Program: Ch-ch-ch-ch Changes

It’s been a minute because it’s been a lot lately. If you have been here for a while, you know that DC has been working at the same program for about 10 or 11 years now.

Tales From The Day Program – 60 Cents

Anyway…. I just received a call from DC’s program.

The Department of Labor had paid a visit there and they discovered that they were required to be paying federal minimum wage instead of state minimum. So they have a check for DC.

Tales from the Day Program – Update on the New Program

As I may or may not have mentioned, I noticed an immediate change in his anxiety levels since he found out that he would be leaving said program and even more-so now that he is completely out of said program.

More Tales From the Day Program – Missed Meetings and Staffing Changes

I had a meeting scheduled with DC’s program, to go over the particulars about moving him into the new department and to go over how he has been doing there since the move.

Tales From The Day Program – Time Studies

I am not sure that I have written about this incident before, but I was looking though the Tales From The Day Program posts and thought I would add this to the collection.

When DC first started attending his day program, he split his time between two departments – 2 days  working in the greenhouse and 3 days in the “recreation/piecework” program.